Resources
PWN4PWN has carefully curated a selection of tools, downloads, and trusted links to help you better understand Narcolepsy and Idiopathic Hypersomnia, manage your condition, and educate those around you.
From medication guidance and medical cards to clinic prep tools and international documents, this resource center is designed to support you at every stage of your journey.
Download PDFs
for offline use or to share with doctors, teachers, and loved ones
Explore web links
for current information, research, and support networks
Access multilingual tools
for global education and advocacy
If you know of a helpful site or document not listed here, let us know! Email us the link and a brief description so we can consider adding it.
Downloadable Documents
A printable flyer for clinic waiting rooms or hospital bulletin boards.
Medical Info Cards (Printable PDFs):
For approved researchers requesting access to our N Register data.
- CoRDS Researcher Access Request Form
Medication-Related Resources
These tools and firsthand experiences can help you navigate conversations with your doctor and understand common treatment paths.
- Discover Xywav – Overview of Xywav for Narcolepsy or IH
- Xyrem Logbook – What to track when starting Xyrem
- Antidepressants & Narcolepsy – What you need to know
- Baclofen for Dummies – A practical patient guide
- Xyrem vs. Baclofen – A personal comparison from lived experience
- PSG Study – Baclofen – Clinical study overview
- PSG Study – Xyrem – Clinical study overview
Multilingual & Global Resources
Looking for information in other languages or seeking international support? We’ve included select multilingual resources and encourage community members to explore reputable international groups, especially on platforms like Facebook and global health networks.
Contribute a Resource
Know of a great tool, PDF, or website that could benefit others living with Narcolepsy or IH?
We’re always updating this list with the help of our community. Send us the link and a short description using our contact form.
