Get Involved with PWN4PWN
PWN4PWN is a nonprofit, patient-led organization dedicated to upporting people with Narcolepsy (PWN) and Idiopathic Hypersomnia (PWIH). We’re building a stronger, more connected community through education, empowerment, advocacy, and peer-driven support.
Whether you’re ready to volunteer, explore our programs, share your story, or participate in research — there’s a place for you here.
Our NapChat community is the heart of PWN4PWN. It’s a safe, ad-free digital space built by and for people with Narcolepsy and IH. Inside, you’ll find virtual events, interest- based discussion groups, and real-time support from people who actually get it.
No algorithms or ads — just real people, real support
Tailored spaces for personal and professional journeys
Timely updates on treatments, trials, and self-care strategies
Direct access to experts, peers, and curated resources
Explore Our Programs
We offer structured, interactive programs that support all aspects of life with Narcolepsy
and IH — from employment to wellness and advocacy.
Volunteer With Us
PWN4PWN is powered by people — and that means we need you. Whether you’re creative, organized, curious, or just want to help however you can, there’s a place for you on our team.
Volunteer Roles Include:
Share Your Story
Your experience matters — and your voice can help someone feel seen, heard, and understood. We welcome guest writers who want to share their story or insight about living with Narcolepsy or IH. You can write anonymously or with credit.
You Belong Here
At PWN4PWN, we’re building more than a nonprofit — we’re building a movement. One that puts lived experience at the center of change. Whether you have Narcolepsy or IH, care for someone who does, or simply want to help — we’re glad you’re here.
to support, educate, and empower a community that thrives together.
Share Your Story
Have something to say? A story to tell? A strategy that’s helped you — or a truth that needs to be heard?
We welcome blog submissions from people with Narcolepsy or IH, caregivers, researchers, and advocates who want to contribute their voice to this movement.
Types of posts we accept:
Please Note:
All submissions are reviewed for content suitability, tone, and alignment with PWN4PWN’s mission. Submission does not guarantee publication. We aim to publish pieces that are respectful, inclusive, and empowering to our community.
