Chronic Fatigue Syndrome (CFS)
Narcolepsy effects 1 in 2000 people while this disorder is still considered rare it there are many that go undiagnosed as Chronic Fatigue Syndrome (CFS) and other sleeping disorders such as sleep Apnea.
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Its is a long-term neurological condition
it can negatively impact social activities, school, work, and overall health.
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What is CoRDS?
Coordination of Rare Diseases at Sanford Research
Based at Sanford Research, a nonprofit research institution, CoRDS is a centralized international patient registry for all rare diseases.

Join PWN4PWN and CoRDS to help generate awareness and more information on your Narcolepsy.
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Ready to enjoy life?

Dive into our resources to find treatments, doctors, and others with Narcolepsy to know you’re not alone!

Our team host monthly and weekly events to bring you into our family.

Members

Patients/Parents/Partners welcome to not being alone! On the search for ways to stay awake or get better rest? Join us for just $10 dollars a year! This includes your very own Patient Narcolepsy Card for those sudden cataplexy moments we’ve all experienced!

Doctors

Welcome! We honor all PCP, Sleep Specialist, Physiatrist, Pulmonologist or anyone just curious how sleep affects their patients. We will provide live and recorded training sessions to keep you up to date on symptoms, treatments and types of diagnostics that help your continuing education but allows you to e one of our NARCOLEPSY SUPSERSTARS!

Sponsors

Where would we be without you! You keep us all up to date with the newest treatments, clinical trials and patient assistant programs! Hosting events for newly diagnosed, borderline and our Superstar Doctors to help them know when the new treatments are coming out.

One thing we would like to share with all of our members is that hundreds if not thousands of patients per year are misdiagnosed for depression, sleep apnea (which can coincide), insomnia and many other comorbidities that coincide with Narcolepsy. A PWN4PWN we give you a platform learn from each other about your treatment, clinical trials, holistic option and payment assistant programs.

Meet Our Sponsors

if you want to apply for our medical information card.

drop us a line and keep in touch