Lived Experiences. Bold Voices. Sleep Truths Unfiltered.
Explore stories, strategies, and insights from people living with Narcolepsy and IH—because the more we share, the stronger we become.
The PWN4PWN Blog is a space for lived experiences, thoughtful insights, and valuable information from — and for — people with Narcolepsy and Idiopathic Hypersomnia (IH). Here, we amplify community voices, share expert-backed resources, and shine a light on the everyday realities of living with sleep disorders.
Latest topics include:
Navigating college with Narcolepsy
How to explain IH to your employer
Finding hope after diagnosis
The science of sleep and how it’s evolving
From the Desk of Jane E. Powell: Progress, Partnerships, and What’s Next at PWN4PWN
Dear Friends, It has been an extraordinary season of progress and momentum for PWN4PWN. From safer skies with the TSA to new career opportunities through Udemy, our mission is alive
Pregnancy Update #4: Glucose Tolerance Test, Narcolepsy & 31 Weeks of Resilience
💕 Hello PWN Family! I’m currently 31 weeks pregnant, and let me just say this: if you’ve ever been handed 100 grams of glucose and told to drink it in
Pregnancy Update #3: 26 Weeks, Glucose Drama & A Big Name Reveal
💕 Hello PWN Family! It’s hard to believe, but I’m officially 26 weeks pregnant — and yes, the baby is now the size of an acorn squash. If that sounds
Pregnancy Update #2: SUPERWOMAN – Juggling Narcolepsy, Pregnancy & Heartburn!
💕 Hello PWN Family! I’m excited to share my second pregnancy update — I’m 16 weeks along and expecting a baby girl! According to the baby apps, she’s now the
Pregnancy Update #1: My Valentine’s Day Surprise 💕
💕 The Valentine’s Day Surprise That Changed Everything I still can’t believe I’m saying this… I found out I was pregnant on Valentine’s Day. 💖 It was unexpected. It was
By Julie
From my earliest memories, an unrelenting fog of fatigue followed me everywhere. Starting around age 10, I would suddenly pass out without warning. It happened so much in junior high
My Narcolepsy Travel
I have no clue what I’m about to write, but I feel I should share my trip with you all. #narcolepsytravel I got an early birthday present to go see
By Brenda Moore
Catch that Cat! I was finally starting to feel sleepy as 5 a.m. rolled around. Transitioning from night shift mode to being awake during the day is always tricky. I
Share Your Story
Have something to say? A story to tell? A strategy that’s helped you or a truth that needs to be heard?
We welcome blog submissions from people with Narcolepsy or IH, caregivers, researchers, and advocates who want to contribute their voice to this movement.
Types of posts we accept:
