Lived Experiences. Bold Voices. Sleep Truths Unfiltered.
Explore stories, strategies, and insights from people living with Narcolepsy and IH—because the more we share, the stronger we become.
The PWN4PWN Blog is a space for lived experiences, thoughtful insights, and valuable information from — and for — people with Narcolepsy and Idiopathic Hypersomnia (IH). Here, we amplify community voices, share expert-backed resources, and shine a light on the everyday realities of living with sleep disorders.
Latest topics include:
Navigating college with Narcolepsy
How to explain IH to your employer
Finding hope after diagnosis
The science of sleep and how it’s evolving
From the Desk of Jane E. Powell: Progress, Partnerships, and What’s Next at PWN4PWN
Dear Friends, It has been an extraordinary season of progress and momentum for PWN4PWN. From safer skies with the TSA to new career opportunities through Udemy, our mission is alive
Pregnancy Update #4: Glucose Tolerance Test, Narcolepsy & 31 Weeks of Resilience
💕 Hello PWN Family! I’m currently 31 weeks pregnant, and let me just say this: if you’ve ever been handed 100 grams of glucose and told to drink it in
Pregnancy Update #3: 26 Weeks, Glucose Drama & A Big Name Reveal
💕 Hello PWN Family! It’s hard to believe, but I’m officially 26 weeks pregnant — and yes, the baby is now the size of an acorn squash. If that sounds
Pregnancy Update #2: SUPERWOMAN – Juggling Narcolepsy, Pregnancy & Heartburn!
💕 Hello PWN Family! I’m excited to share my second pregnancy update — I’m 16 weeks along and expecting a baby girl! According to the baby apps, she’s now the
Pregnancy Update #1: My Valentine’s Day Surprise 💕
💕 The Valentine’s Day Surprise That Changed Everything I still can’t believe I’m saying this… I found out I was pregnant on Valentine’s Day. 💖 It was unexpected. It was
By Stephanie Pagnotta
Today I have to do the householding…I drag myself forward. Every time I take the stairs I am panting upstairs….I sort the laundry while sitting on a chair.Bending over and
By Randy Klein
Finding a way to move forwardBy: Randy KleinJuly 10, 2021 Time seems to have gone by both slowly and quickly in the last two years. Quickly in the sense that
By Jonathan Lesko
By Jonathan Lesko Awesome Alert“My husband, spouse of (me) a narcoleptic, is wicked smart and loves to write. I mean- ANY type of creative writing is his JAM.He’s going through
Share Your Story
Have something to say? A story to tell? A strategy that’s helped you or a truth that needs to be heard?
We welcome blog submissions from people with Narcolepsy or IH, caregivers, researchers, and advocates who want to contribute their voice to this movement.
Types of posts we accept:
