Narcolepsy & IH Around the World
Welcome to Narcolepsy World Wide, your curated gateway to global resources for narcolepsy awareness, support, and community. Here, we’ve gathered links to trusted organizations, advocacy groups, research hubs, and Facebook communities spanning continents — all in one place.
Whether you’re seeking a local support group, exploring the latest educational content, or looking for resources in your language or region, this page is your starting point. From Australia to Austria, France to Finland, you’re just a click away from finding the connection, insight, or safe space you need.
Want to add your country or a group to this list? Drop us a line — we’re always building bridges, not barriers.
US Based Digital Communities for People with Narcolepsy & IH
Facebook discussion groups can be a valuable place to share your experiences with narcolepsy, ask questions, and pick up practical tips from others who understand. You might even discover another PWN (Person With Narcolepsy) right in your local area.
Below is a selection of groups you may find helpful. Most require you to request membership before joining.
Local Narcolepsy & IH Support Groups
- Atlanta Hypersomnia Support Group
- Alabama Hypersomnia Support Group
- Central Texas Narcolepsy Support Group
- Colorado STRONG Narcolepsy and IH Support Group
- CNY Narcolepsy Support Group
- DFW Narcolepsy Friends (Dallas/Fortworth)
- Foothills Narcolepsy Support Group
- Friends with Narcolepsy in Dayton, Ohio area
- Florida Narcolepsy Support Group
- Gulf Coast Narcolepsy Support Group
- Hypersomnia and Narcolepsy Awareness for the Pacific Coast (US)
- Mid-Atlantic Narcoleptics (NY,PA,NJ,DE,MD)
- Midwest Narcolepsy Support Group (Chicago)
- MN and Western WI Hypersomnia Support Group
- Narcolepsy Friends (WesternCentral PA,OH,WV,MD)
- Narcolepsy of Indiana
- Narcoleptics In Paradise Support Group
- Northwest Narclepsy Support Group
- Narcolepsy Support Group of Iowa
- Narcolepsy In Utah
- Oklahoma Narcolepsy Friends
- Southeast IH Awareness
- Virginia Narcolepsy Friends
National Narcolepsy & IH Support Groups
- Fix Narcolepsy | Narcolepsy R' Us
- Helpful Narcolepsy Information
- Living with Narcolepsy
- Naptown Narcoleptics – Was Narcolepsy of Indiana
- N.R.G. Narcolepsy Resource Group
- Narcolepsy/Cataplexy Education Focused Group
- Narcolepsy Friends
- Narcoleptics and other Higher Life Forms
- Narcolepsy Support Group
- Narcolepsy Support Group
- People Helping People with Narcolepsy
- PWN4PWN
- Shock Collar Nation-Cataplexy Experienced
- Supporters of People with Narcolepsy
Parents of Children with Narcolepsy Digital Communities
- Children with Narcolepsy and Cataplexy
- Children with Narcolepsy and Cataplexy Closed Group
- Closed Group Children with Narc and Cataplexy
- Kids and Teens with Central Hypersomnia’s
- Narcolepsy support for parents with children who have narcolepsy
- Narcolepsy Kids & Parent Support Group
- Parents of Children with Narcolepsy (United States)
- Parents of Children with Hypersomnia
- Preganancy & Babies PWN
- Parents of Children with Narcolepsy (Utah)
Special Interest Groups for People with Narcolepsy & IH
International Digital Communities for People with Narcolepsy & IH
Global Resources for People with Narcolepsy & IH
- SUISSE Schweizerische Narkolepsie Gesellschaft (SNaG)
- SPAIN La Asociación Española de Narcolepsia (AEN)
- THE NETHERLANDS Nederlandse Vereniging Voor Narcolepsie
- UNITED KINGDOM Narcolepsy UK
- UNITED STATES Wake Up Narcolepsy
- UNITED STATES Hypersomnia Foundation
- UNITED STATES Project Sleep
- UNITED STATES PWN4PWN
- UNITED STATES Narcolepsy Network
Know a group we should add?
If you run or belong to a Facebook group for people with narcolepsy or their supporters, we’d love to include it. Please email us the details and we’ll add it to the list.
