Narcolepsy & IH Around the World

Welcome to Narcolepsy World Wide, your curated gateway to global resources for narcolepsy awareness, support, and community. Here, we’ve gathered links to trusted organizations, advocacy groups, research hubs, and Facebook communities spanning continents — all in one place.
Whether you’re seeking a local support group, exploring the latest educational content, or looking for resources in your language or region, this page is your starting point. From Australia to Austria, France to Finland, you’re just a click away from finding the connection, insight, or safe space you need.
Want to add your country or a group to this list? Drop us a line — we’re always building bridges, not barriers.
Facebook Support Groups for People With Narcolepsy & IH
Facebook discussion groups can be a valuable place to share your experiences with narcolepsy, ask questions, and pick up practical tips from others who understand. You might even discover another PWN (Person With Narcolepsy) right in your local area.
Below is a selection of groups you may find helpful. Most require you to request membership before joining.
Narcolepsy & IH General Support
- PWN4PWN
- Living with Narcolepsy
- N.R.G. Narcolepsy Resource Group
- Helpful Narcolepsy Information
- Narcolepsy/Cataplexy Education Focused Group
- Shock Collar Nation-Cataplexy Experienced
- Narcolepsy Friends
- Narcoleptics and other Higher Life Forms
- Foothills Narcolepsy Support Group
- Supporters of People with Narcolepsy
- Narcolepsy Support Group
- Narcolepsy Support Group
- Narcolepsy Support Group
- Narcolepsy Support Group
Narcolepsy & IH Local Support Groups
- Narcoleptics In Paradise Support Group
- Mid-Atlantic Narcoleptics (NY,PA,NJ,DE,MD)
- Narcolepsy of Indiana
- Northwest Narclepsy Support Group
- DFW Narcolepsy Friends (Dallas/Fortworth)
- Virginia Narcolepsy Friends
- Narcolepsy Friends (WesternCentral PA,OH,WV,MD)
- Friends with Narcolepsy in Dayton, Ohio area
- OK Narcolepsy Friends
- Parents of Children with Narcolepsy (Utah)
Narcolepsy & IH Children with Narcolepsy
- Narcolepsy support for parents with children who have narcolepsy
- Parents of Children with Narcolepsy (United States)
- Children with Narcolepsy and Cataplexy
- Closed Group Children with Narc and Cataplexy
- Children with Narcolepsy and Cataplexy Closed Group
- Preganancy & Babies PWN
- Narcolepsy Kids & Parent Support Group
Narcolepsy & IH World Wide
Narcolepsy & IH information
Narcolepsy & IH FB Groups world wide
- Living with narcolepsy in Australia
- Narcolepsie België en Nederland
- Narkolepsie und Kataplexie
- PWN4PWN
- Idiopathic Hypersomnolence Worldwide (Idiopathic hypersomnia)
- Idiopathic Hypersomnia
- Idiopathic Hypersomnia Awareness
- Living with Idiopathic Hypersomnia - USA Community Group
- Loving Someone with Hypersomnia
- THE NETHERLANDS Nederlandse Vereniging Voor Narcolepsie
- SPAIN La Asociación Española de Narcolepsia (AEN)
- SUISSE Schweizerische Narkolepsie Gesellschaft (SNaG)
- UNITED KINGDOM Narcolepsy UK
- UNITED STATES Wake Up Narcolepsy
- UNITED STATES Hypersomnia Foundation
- UNITED STATES Project Sleep
- UNITED STATES PWN4PWN
Know a group we should add?
If you run or belong to a Facebook group for people with narcolepsy or their supporters, we’d love to include it. Please email us the details and we’ll add it to the list.
