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		<title>PWN4PWN Founder Jane Powell Featured in Barron’s on the Reality of Narcolepsy</title>
		<link>https://www.pwn4pwn.org/2026/03/17/pwn4pwn-jane-powell-featured-barrons-narcolepsy/</link>
		
		<dc:creator><![CDATA[Jane Powell]]></dc:creator>
		<pubDate>Tue, 17 Mar 2026 12:00:01 +0000</pubDate>
				<category><![CDATA[Press Release]]></category>
		<category><![CDATA[barrons]]></category>
		<category><![CDATA[harmony biosciences]]></category>
		<category><![CDATA[Jane Powell]]></category>
		<category><![CDATA[Narcolepsy]]></category>
		<category><![CDATA[Patient Advocacy]]></category>
		<category><![CDATA[PWN4PWN]]></category>
		<category><![CDATA[rare disease]]></category>
		<category><![CDATA[Sleep Disorders]]></category>
		<category><![CDATA[wakix]]></category>
		<guid isPermaLink="false">https://www.pwn4pwn.org/?p=7893</guid>

					<description><![CDATA[PWN4PWN Founder Jane Powell was recently featured in Barron’s, bringing national attention to the lived reality of narcolepsy and the urgent need for greater awareness, diagnosis, and support. In the article, Powell reflects on her experience navigating narcolepsy even in high-level professional environments. “I remember sitting with CEOs of billion-dollar companies after lunch, trying hard [&#8230;]]]></description>
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									<p data-start="700" data-end="898"><strong data-start="700" data-end="898">PWN4PWN Founder Jane Powell was recently featured in <em data-start="755" data-end="765">Barron’s</em>, bringing national attention to the lived reality of narcolepsy and the urgent need for greater awareness, diagnosis, and support.</strong></p><p data-start="900" data-end="1017">In the article, Powell reflects on her experience navigating narcolepsy even in high-level professional environments.</p><blockquote data-start="1019" data-end="1216"><p data-start="1021" data-end="1216">“I remember sitting with CEOs of billion-dollar companies after lunch, trying hard not to fall asleep and digging my nails into my hands just to stay awake.”</p></blockquote><blockquote data-start="1218" data-end="1365"><p data-start="1220" data-end="1365">“The excessive daytime sleepiness was very hard. I didn’t go out on weekends. I didn’t want to see people.”</p></blockquote><p data-start="1367" data-end="1567">These moments highlight a reality many people living with narcolepsy face. The condition is often invisible, misunderstood, and significantly underdiagnosed, even among high-functioning professionals.</p><p data-start="1569" data-end="1794">While the <em data-start="1579" data-end="1589">Barron’s</em> article focuses on the evolving treatment landscape and investment perspective, it also reinforces a critical truth: behind every data point is a real person navigating a complex, life-altering condition.</p><p data-start="1796" data-end="1916">At PWN4PWN, we are committed to ensuring those voices are heard across healthcare, research, and industry conversations.</p><p data-start="113" data-end="311"> </p><p data-start="1918" data-end="1967"><strong data-start="1918" data-end="1967">We invite you to read the full article below.</strong></p>								</div>
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		<title>PWN4PWN Partners with Narcolepsy Life Academy to Reignite Health &#038; Wellness 360 with Rise Up Program</title>
		<link>https://www.pwn4pwn.org/2025/09/19/pwn4pwn-partners-with-narcolepsy-life-academy-health-wellness-360/</link>
		
		<dc:creator><![CDATA[Jane Powell]]></dc:creator>
		<pubDate>Sat, 20 Sep 2025 00:46:44 +0000</pubDate>
				<category><![CDATA[Press Release]]></category>
		<category><![CDATA[Chronic Illness Support]]></category>
		<category><![CDATA[Health & Wellness 360]]></category>
		<category><![CDATA[Idiopathic Hypersomnia]]></category>
		<category><![CDATA[Jane Powell]]></category>
		<category><![CDATA[Narcolepsy]]></category>
		<category><![CDATA[Narcolepsy Life Academy]]></category>
		<category><![CDATA[Patient Advocacy]]></category>
		<category><![CDATA[Paul Poulos]]></category>
		<category><![CDATA[PERMAH]]></category>
		<category><![CDATA[PWN4PWN]]></category>
		<category><![CDATA[Rise Up Program]]></category>
		<category><![CDATA[Sleep Disorders]]></category>
		<category><![CDATA[Wellbeing Programs]]></category>
		<category><![CDATA[Wellness Coaching]]></category>
		<guid isPermaLink="false">https://www.pwn4pwn.org/?p=7213</guid>

					<description><![CDATA[  Press Release FOR IMMEDIATE RELEASE PWN4PWN Partners with Narcolepsy Life Academy to Reignite Health &#38; Wellness 360 with Rise Up Program Tampa, FL – September 15, 2025 — PWN4PWN Corp, a patient-led nonprofit dedicated to empowering people with narcolepsy and idiopathic hypersomnia (IH), today announced a new partnership with Narcolepsy Life Academy (NLA) and [&#8230;]]]></description>
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									<h3 data-start="967" data-end="990"> </h3><p data-start="967" data-end="990"><strong data-start="971" data-end="988">Press Release</strong></p><p data-start="991" data-end="1018"><strong data-start="991" data-end="1016">FOR IMMEDIATE RELEASE</strong></p><h2 data-start="1020" data-end="1129"><strong data-start="1023" data-end="1127">PWN4PWN Partners with Narcolepsy Life Academy to Reignite Health &amp; Wellness 360 with Rise Up Program</strong></h2><p data-start="1131" data-end="1413"><strong data-start="1131" data-end="1165">Tampa, FL – September 15, 2025</strong> — PWN4PWN Corp, a patient-led nonprofit dedicated to empowering people with narcolepsy and idiopathic hypersomnia (IH), today announced a new partnership with <strong data-start="1325" data-end="1358">Narcolepsy Life Academy (NLA)</strong> and its <strong data-start="1367" data-end="1386">Rise Up Program</strong>, led by CEO Paul Poulos.</p><p data-start="1415" data-end="1659">Launching November 1, this collaboration breathes new life into PWN4PWN’s <strong data-start="1489" data-end="1514">Health &amp; Wellness 360</strong> initiative, expanding support for patients through evidence-based wellbeing education, structured coaching, and stronger community connection.</p><p data-start="1661" data-end="2089">The <strong data-start="1665" data-end="1684">Rise Up Program</strong>, based on the internationally recognized <strong data-start="1726" data-end="1746">PERMAH framework</strong> (Positive Emotions, Engagement, Relationships, Meaning, Accomplishment, Health), will be delivered in 26-week cohorts and fully integrated into Health &amp; Wellness 360. Participants will gain access to guided sessions, practical tools, and personalized coaching to improve daily energy, build resilience, and create sustainable wellness habits.</p><blockquote data-start="2091" data-end="2494"><p data-start="2093" data-end="2494">“Narcolepsy Life Academy was founded on the belief that people with sleep disorders can live fully and thrive when they are equipped with the right tools,” said <strong data-start="2254" data-end="2269">Paul Poulos</strong>, CEO of Narcolepsy Life Academy. “Through Rise Up and this partnership with PWN4PWN, we are creating a supportive, practical pathway for patients to feel better, function better, and reclaim confidence in their daily lives.”</p></blockquote><h3 data-start="2496" data-end="2577">Key features of the updated Health &amp; Wellness 360 powered by Rise Up include:</h3><ul data-start="2579" data-end="3175"><li data-start="2579" data-end="2720"><p data-start="2581" data-end="2720"><strong data-start="2581" data-end="2610">Weekly wellbeing sessions</strong> aligned to PERMAH principles, covering topics like positive emotions, resilience, and purpose-driven habits</p></li><li data-start="2721" data-end="2824"><p data-start="2723" data-end="2824"><strong data-start="2723" data-end="2764">Interactive coaching and peer support</strong> delivered via PWN4PWN’s secure, enterprise-grade platform</p></li><li data-start="2825" data-end="2942"><p data-start="2827" data-end="2942"><strong data-start="2827" data-end="2857">Patient-centered resources</strong>, including toolkits and self-guided workbooks developed by Narcolepsy Life Academy</p></li><li data-start="2943" data-end="3075"><p data-start="2945" data-end="3075"><strong data-start="2945" data-end="2965">Equitable access</strong> through scholarships and outreach, ensuring participation is not limited by geography or financial barriers</p></li><li data-start="3076" data-end="3175"><p data-start="3078" data-end="3175"><strong data-start="3078" data-end="3102">Data-driven outcomes</strong>, with measurable improvements in energy, vitality, and overall wellbeing</p></li></ul><blockquote data-start="3177" data-end="3496"><p data-start="3179" data-end="3496">“This partnership delivers on the vision we had when Health &amp; Wellness 360 was first conceived,” said <strong data-start="3281" data-end="3299">Jane E. Powell</strong>, CEO &amp; Executive Director of PWN4PWN. “By joining forces with Narcolepsy Life Academy, we are moving beyond awareness into measurable wellbeing impact that patients can feel in their daily lives.”</p></blockquote><p data-start="3498" data-end="3586">The first <strong data-start="3508" data-end="3526">Rise Up cohort</strong> within Health &amp; Wellness 360 begins <strong data-start="3563" data-end="3583">November 1, 2025</strong>.</p><p data-start="3588" data-end="3733">📄 <strong data-start="3591" data-end="3635">For more information or to apply, visit:</strong><br data-start="3635" data-end="3638" />👉 <a class="decorated-link" href="https://www.pwn4pwn.org/health-wellness-360/" target="_new" rel="noopener" data-start="3641" data-end="3733">https://www.pwn4pwn.org/health-wellness-360/</a></p><hr data-start="3735" data-end="3738" /><h3 data-start="3740" data-end="3763">📣 Media Contact:</h3><p data-start="3764" data-end="3836"><strong data-start="3764" data-end="3789">PWN4PWN Programs Team</strong><br data-start="3789" data-end="3792" />📧 <a class="decorated-link cursor-pointer" rel="noopener" data-start="3795" data-end="3815">programs@pwn4pwn.org</a><br data-start="3815" data-end="3818" />🌐 <a class="decorated-link" href="https://www.pwn4pwn.org" target="_new" rel="noopener" data-start="3821" data-end="3836">www.pwn4pwn.org</a></p>								</div>
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		<title>PWN4PWN and Udemy Partner to Expand Career Pathways for People with Narcolepsy &#038; Idiopathic Hypersomnia</title>
		<link>https://www.pwn4pwn.org/2025/09/16/pwn4pwn-udemy-partnership-career-pathways/</link>
		
		<dc:creator><![CDATA[Jane Powell]]></dc:creator>
		<pubDate>Wed, 17 Sep 2025 00:38:45 +0000</pubDate>
				<category><![CDATA[Press Release]]></category>
		<category><![CDATA[Accessibility]]></category>
		<category><![CDATA[Career Pathways]]></category>
		<category><![CDATA[Idiopathic Hypersomnia]]></category>
		<category><![CDATA[JOBS Project]]></category>
		<category><![CDATA[Narcolepsy]]></category>
		<category><![CDATA[Online Learning]]></category>
		<category><![CDATA[Patient Advocacy]]></category>
		<category><![CDATA[PWN4PWN]]></category>
		<category><![CDATA[Udemy]]></category>
		<guid isPermaLink="false">https://www.pwn4pwn.org/?p=7267</guid>

					<description><![CDATA[    Press Release FOR IMMEDIATE RELEASE Tampa, FL – September 15, 2025 – Nearly one in four people with narcolepsy or idiopathic hypersomnia (IH) are unemployed, despite many holding college degrees. To help close this gap, PWN4PWN Corp, a patient-led nonprofit, today announced a new partnership with Udemy, the leading online skills marketplace, to [&#8230;]]]></description>
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									<p> </p><p> </p><p><strong>Press Release</strong></p><p><strong>FOR IMMEDIATE RELEASE</strong></p><p><strong>Tampa, FL – September 15, 2025</strong> – Nearly one in four people with narcolepsy or idiopathic hypersomnia (IH) are unemployed, despite many holding college degrees. To help close this gap, <strong>PWN4PWN Corp</strong>, a patient-led nonprofit, today announced a new partnership with <strong>Udemy</strong>, the leading online skills marketplace, to expand its flagship <strong>JOBS Project</strong>.</p><h2><strong>Why This Partnership Matters</strong></h2><p>Through this collaboration, JOBS Project participants will gain <strong>free access to more than 25,000 online courses</strong> — including career-advancing certifications across technology, healthcare, business, and creative industries.</p><p>Flexible, self-paced learning ensures that people managing unpredictable symptoms can <strong>build skills and pursue sustainable careers on their own terms</strong>.</p><h2><strong>What Participants Gain Through the JOBS Project</strong></h2><p>With Udemy integrated into the JOBS Project, participants now have new opportunities to:</p><ul><li>✅ <strong>Earn career-relevant certifications</strong> that strengthen employability and entrepreneurial skills</li><li>✅ <strong>Access flexible, on-demand learning</strong> that adapts to varying energy levels and health needs</li><li>✅ <strong>Leverage AI-powered workshops and coaching</strong> for resumes, interviews, and job applications</li></ul><p><em>“This partnership is a game-changer for our community,” said Jane E. Powell, CEO &amp; Executive Director of PWN4PWN. “By removing barriers to high-quality education, we’re equipping people with the tools, certifications, and confidence they need to succeed. Whether that means advancing in a career, launching a business, or pursuing a new professional path.”</em></p><h2><strong>A Patient-Led Solution for Employment Barriers</strong></h2><p>The JOBS Project already provides <strong>AI-powered career workshops, coaching, and job readiness support</strong>. By integrating Udemy’s global platform, participants will now connect new skills with <strong>tangible, career-building credentials</strong>.</p><p>The JOBS Project also collaborates with <strong>Pura Vida Partners</strong>, led by IT recruiting and AI thought leader <strong>Sam Velu</strong>, to deliver <em>Basic and Advanced AI for Job Seekers</em> workshops. Udemy’s expansive course library adds strength to this ecosystem by broadening both skill-building and certification opportunities.</p><h2><strong>About the JOBS Project</strong></h2><p>The JOBS Project is part of PWN4PWN’s broader suite of <strong>patient-driven programs</strong> — including:</p><ul><li>Health &amp; Wellness 360</li><li>NapChat Digital Community</li><li>N &amp; IH Registry</li></ul><p>All programs are designed to advance <strong>equity, wellbeing, and inclusion</strong> for people living with narcolepsy and idiopathic hypersomnia.</p><p data-start="2911" data-end="3068">For more information or to enroll in the JOBS Project, visit <strong data-start="2972" data-end="3028"><a class="decorated-link" href="https://www.pwn4pwn.org/jobs" target="_new" rel="noopener" data-start="2974" data-end="3026">www.pwn4pwn.org/jobs</a></strong> or email <strong data-start="3038" data-end="3065"><a class="decorated-link cursor-pointer" rel="noopener" data-start="3040" data-end="3063">jobsproject@pwn4pwn.org</a></strong>.</p><hr data-start="3070" data-end="3073" /><h2 data-start="3075" data-end="3093"><strong>About PWN4PWN</strong></h2><p data-start="3094" data-end="3524">PWN4PWN is a patient-led nonprofit organization dedicated to empowering people with narcolepsy and idiopathic hypersomnia through education, advocacy, and peer support. Its initiatives — including the Patient Toolkit Program, NapChat Digital Community, NapChat Webinar Series, Health &amp; Wellness 360, the JOBS Project, and the N &amp; IH Registry — advance equity, wellbeing, and inclusion for the sleep disorder community worldwide.</p><p data-start="3531" data-end="3549"><strong>Media Contact</strong></p><p data-start="3550" data-end="3654"><strong data-start="3550" data-end="3575">PWN4PWN Programs Team</strong><br data-start="3575" data-end="3578" />📧 <a class="decorated-link cursor-pointer" rel="noopener" data-start="3581" data-end="3604">programs@pwn4pwn.org</a><br data-start="3604" data-end="3607" />🌐 <a class="decorated-link" href="https://www.pwn4pwn.org" target="_new" rel="noopener" data-start="3610" data-end="3652">www.pwn4pwn.org</a></p>								</div>
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		<title>Pregnancy Update #4: Glucose Tolerance Test, Narcolepsy &#038; 31 Weeks of Resilience</title>
		<link>https://www.pwn4pwn.org/2025/09/16/pregnancy-update-4-glucose-test-narcolepsy-31-weeks/</link>
					<comments>https://www.pwn4pwn.org/2025/09/16/pregnancy-update-4-glucose-test-narcolepsy-31-weeks/#respond</comments>
		
		<dc:creator><![CDATA[Jane Powell]]></dc:creator>
		<pubDate>Tue, 16 Sep 2025 21:33:08 +0000</pubDate>
				<category><![CDATA[Video Blog]]></category>
		<category><![CDATA[31 Weeks Pregnant]]></category>
		<category><![CDATA[Chronic Illness and Pregnancy]]></category>
		<category><![CDATA[Continuous Glucose Monitor]]></category>
		<category><![CDATA[Eliana Jane]]></category>
		<category><![CDATA[Gestational Diabetes]]></category>
		<category><![CDATA[Glucose Tolerance Test]]></category>
		<category><![CDATA[High-Risk Pregnancy]]></category>
		<category><![CDATA[Idiopathic Hypersomnia]]></category>
		<category><![CDATA[Jane Powell]]></category>
		<category><![CDATA[Maternal Fetal Medicine]]></category>
		<category><![CDATA[Narcolepsy and Pregnancy]]></category>
		<category><![CDATA[Pregnancy Update]]></category>
		<category><![CDATA[PWN4PWN]]></category>
		<guid isPermaLink="false">https://www.pwn4pwn.org/?p=7467</guid>

					<description><![CDATA[💕 Hello PWN Family! I’m currently 31 weeks pregnant, and let me just say this: if you’ve ever been handed 100 grams of glucose and told to drink it in 5 minutes — you know this is not your average prenatal check-in. This pregnancy continues to challenge and teach me in ways I never expected. [&#8230;]]]></description>
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									<h3 data-start="454" data-end="477">💕 Hello PWN Family!</h3><p data-start="1653" data-end="1852">I’m currently <strong data-start="1667" data-end="1688">31 weeks pregnant</strong>, and let me just say this: if you’ve ever been handed 100 grams of glucose and told to drink it in 5 minutes — you know this is not your average prenatal check-in.</p><p data-start="1854" data-end="2123">This pregnancy continues to challenge and teach me in ways I never expected. Living with narcolepsy while navigating pregnancy is hard enough. Add a <strong data-start="2003" data-end="2036">3-hour glucose tolerance test</strong> and gestational diabetes into the mix, and it becomes a whole new level of complexity.</p><p data-start="2125" data-end="2222">But like always — I’m still here, still moving forward, and still learning every step of the way.</p><h3 data-start="2229" data-end="2266">💉 Failing the First Glucose Test</h3><p data-start="2268" data-end="2452">I didn’t pass my <strong data-start="2285" data-end="2310">one-hour glucose test</strong>. It came back about 10 points above the limit, and while I didn’t feel like it was drastically high, my care team wasn’t comfortable with it.</p><p data-start="2454" data-end="2507">So that meant the next step: the <strong data-start="2487" data-end="2507">three-hour test.</strong></p><h3 data-start="2514" data-end="2553">⏳ The 3-Hour Glucose Tolerance Test</h3><p data-start="2555" data-end="2656">Let’s talk about that test.<br data-start="2582" data-end="2585" />I drank 100 grams of glucose in under five minutes. It hit me <strong data-start="2647" data-end="2655">hard</strong>.</p><p data-start="2658" data-end="2883">I became clammy, sweaty, and lightheaded — and I had to lie down for nearly the entire test. And yes, baby <strong data-start="2765" data-end="2780">Eliana Jane</strong> didn’t like it either. She was moving, shifting, and responding strongly the whole time. It was a lot.</p><h3 data-start="2890" data-end="2931">📊 Understanding Gestational Diabetes</h3><p data-start="2933" data-end="3176">The thing about <strong data-start="2949" data-end="2973">gestational diabetes</strong> is that it’s not always caused by lifestyle. It’s often just a result of hormones from the placenta. Your body spikes sugar into the bloodstream, but the insulin response doesn’t cross over to the baby.</p><p data-start="3178" data-end="3315">What that means: even small spikes in my morning glucose — say 96 or 104 instead of under 95 — are taken seriously for the baby’s safety.</p><h3 data-start="3322" data-end="3346">💡 Learning to Adapt</h3><p data-start="3348" data-end="3581">To better manage this, I invested in a <strong data-start="3387" data-end="3423">continuous glucose monitor (CGM)</strong>. It’s a small sensor on my arm that gives real-time feedback. It doesn’t hurt, and it’s helped me understand how food, timing, and medication impact my body.</p><p data-start="3583" data-end="3633">With that knowledge, I’ve made some small changes:</p><ul data-start="3634" data-end="3915"><li data-start="3634" data-end="3730"><p data-start="3636" data-end="3730">I now eat <strong data-start="3646" data-end="3682">a small protein snack before bed</strong> — Greek yogurt or almond butter, not ice cream.</p></li><li data-start="3731" data-end="3820"><p data-start="3733" data-end="3820">I’ve spaced out my meals into smaller, more regular intervals — even if I’m not hungry.</p></li><li data-start="3821" data-end="3915"><p data-start="3823" data-end="3915">I’m learning how to stabilize my levels without disrupting my narcolepsy treatment schedule.</p></li></ul><p data-start="3917" data-end="4022">This approach has made me feel <strong data-start="3948" data-end="3983">more confident, more in control</strong>, and most importantly — more prepared.</p><h3 data-start="4029" data-end="4082">💜 Narcolepsy + Pregnancy = A Daily Balancing Act</h3><p data-start="4084" data-end="4194">If you’re living with <strong data-start="4106" data-end="4146">narcolepsy or idiopathic hypersomnia</strong> while pregnant, please know: you are not alone.</p><p data-start="4196" data-end="4327">It’s a complex situation. Meds affect meals. Fatigue is constant. And sometimes, your body just doesn’t follow the &#8220;normal&#8221; script.</p><p data-start="4329" data-end="4494">But here’s the truth: <strong data-start="4351" data-end="4412">gestational diabetes doesn’t mean you did anything wrong.</strong><br data-start="4412" data-end="4415" />It’s not your fault — and it’s manageable, with the right care and information.</p><p data-start="4496" data-end="4706">If you’re going through it, or if you’ve been through a similar journey, I’d love to hear your story. <strong data-start="4598" data-end="4625">Drop it in the comments</strong> — your experience could make someone else feel seen, understood, and encouraged.</p><h3 data-start="4713" data-end="4731">👶 Baby Update</h3><p data-start="4733" data-end="4905">Eliana Jane is doing well, growing strong, and keeping me on my toes — especially now that I’ve figured out how not to knock off the glucose monitor every time I roll over!</p><p data-start="4907" data-end="5018">We’re in the home stretch now, and I’ll keep sharing updates as we head toward the third trimester finish line.</p><h4 data-start="2491" data-end="2517">💌 Let’s Stay Connected</h4><p data-start="2519" data-end="2616">I’ve loved reading your messages and comments — thank you for being part of this journey with me.</p><p data-start="2618" data-end="2662">If you’d like to keep up with these updates:</p><ul data-start="2663" data-end="2898"><li data-start="2663" data-end="2761"><p data-start="2665" data-end="2761">📺 <a class="decorated-link" href="https://www.youtube.com/@PWN4PWN" target="_new" rel="noopener" data-start="2668" data-end="2744"><strong data-start="2669" data-end="2693">Subscribe on YouTube</strong></a> for future vlogs</p></li><li data-start="2762" data-end="2824"><p data-start="2764" data-end="2824">📨 <strong data-start="2767" data-end="2792">Join our newsletter below</strong></p></li><li data-start="2825" data-end="2898"><p data-start="2827" data-end="2898">✍️ <strong data-start="2830" data-end="2863">Want to share your own story?</strong> Submit using the form on this page</p></li></ul><h4 data-start="2905" data-end="2928"> </h4><h4 data-start="2905" data-end="2928">💤 Stay naptastic,</h4><p data-start="2929" data-end="2937"><strong data-start="2929" data-end="2937">Jane</strong></p>								</div>
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		<title>Pregnancy Update #3: 26 Weeks, Glucose Drama &#038; A Big Name Reveal</title>
		<link>https://www.pwn4pwn.org/2025/09/05/pregnancy-update-3-narcolepsy-glucose-test-name-reveal/</link>
					<comments>https://www.pwn4pwn.org/2025/09/05/pregnancy-update-3-narcolepsy-glucose-test-name-reveal/#respond</comments>
		
		<dc:creator><![CDATA[Jane Powell]]></dc:creator>
		<pubDate>Fri, 05 Sep 2025 21:04:51 +0000</pubDate>
				<category><![CDATA[Video Blog]]></category>
		<category><![CDATA[26 Weeks Pregnant]]></category>
		<category><![CDATA[Baby Shower]]></category>
		<category><![CDATA[Eliana Jane]]></category>
		<category><![CDATA[Fatigue in Pregnancy]]></category>
		<category><![CDATA[Glucose Test]]></category>
		<category><![CDATA[High-Risk Pregnancy]]></category>
		<category><![CDATA[Jane Powell]]></category>
		<category><![CDATA[Name Reveal]]></category>
		<category><![CDATA[Narcolepsy and Pregnancy]]></category>
		<category><![CDATA[Pregnancy Update]]></category>
		<category><![CDATA[PWN4PWN]]></category>
		<guid isPermaLink="false">https://www.pwn4pwn.org/?p=7461</guid>

					<description><![CDATA[💕 Hello PWN Family! It’s hard to believe, but I’m officially 26 weeks pregnant — and yes, the baby is now the size of an acorn squash. If that sounds peaceful and cozy, I assure you: it’s been anything but. Pregnancy with narcolepsy isn’t just hard. It’s brutal.But I’m still standing. And so is this [&#8230;]]]></description>
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									<h3 data-start="454" data-end="477">💕 Hello PWN Family!</h3><p data-start="513" data-end="707">It’s hard to believe, but I’m officially <strong data-start="554" data-end="575">26 weeks pregnant</strong> — and yes, the baby is now the size of an acorn squash. If that sounds peaceful and cozy, I assure you: <strong data-start="680" data-end="707">it’s been anything but.</strong></p><p data-start="709" data-end="861">Pregnancy with narcolepsy isn’t just hard. It’s brutal.<br data-start="764" data-end="767" />But I’m still standing. And so is this baby — who is apparently <strong data-start="831" data-end="861">training for the Olympics.</strong></p><p data-start="863" data-end="929">Here’s what’s been going on lately — the real, unfiltered version.</p><h3 data-start="936" data-end="960">🌀 Ultrasound Mayhem</h3><p data-start="962" data-end="1029">Back at my 20-week ultrasound, baby girl <strong data-start="1003" data-end="1028">would not stop moving</strong>.</p><p data-start="1031" data-end="1220">We had <strong data-start="1038" data-end="1067">six different technicians</strong> come in, one after the other, each trying different angles and different tools. But no matter what they tried, we couldn’t get all the key measurements.</p><p data-start="1222" data-end="1397">We <em data-start="1225" data-end="1230">did</em>, however, manage to get this one photo — legs completely over her face.<br data-start="1302" data-end="1305" />So yes, she’s either going to be a gymnast, a dancer, or maybe the future host of <em data-start="1387" data-end="1397">NapChat.</em></p><h3 data-start="1404" data-end="1444">⏳ The Rescheduled 26-Week Ultrasound</h3><p data-start="1446" data-end="1635">I was scheduled for a follow-up four weeks later… but due to delays, it got pushed to 26 weeks. When I arrived for the appointment, I was told I didn’t even have an ultrasound on the books.</p><p data-start="1637" data-end="1652">Cue the stress.</p><p data-start="1654" data-end="1903">They scrambled to make it work — but walking into a situation like that, exhausted and dealing with narcolepsy, was more than frustrating. It’s the kind of logistical chaos that feels even heavier when you&#8217;re running on limited energy to begin with.</p><h3 data-start="1910" data-end="1938">💉 Glucose Test Surprise</h3><p data-start="1940" data-end="2027">As if that weren’t enough, I <strong data-start="1969" data-end="2004">failed my one-hour glucose test</strong> — by about ten points.</p><p data-start="2029" data-end="2250">I hadn’t fasted beforehand (because I was told I didn’t need to), so it wasn’t a total shock… but still, it was hard news to hear. I’ll be following up with my care team and doing the longer test to get a clearer picture.</p><p data-start="2252" data-end="2320">So far, both baby and I are doing well, and we’re staying proactive.</p><h3 data-start="2327" data-end="2349">📈 A Very Big Baby</h3><p data-start="2351" data-end="2417">And then there’s this: she’s measuring in the <strong data-start="2397" data-end="2416">94th percentile</strong>.</p><p data-start="2419" data-end="2588">That means she’s a big baby — healthy, active, and very much making her presence known. It also means we’re keeping a closer eye on everything from now through delivery.</p><h3 data-start="2595" data-end="2627">🎉 Baby Shower &amp; Name Reveal</h3><p data-start="2629" data-end="2739">We recently celebrated our baby shower, and it was such a blessing.<br data-start="2696" data-end="2699" />That’s where we finally shared her name:</p><p data-start="2741" data-end="2757"><strong data-start="2741" data-end="2757">Eliana Jane.</strong></p><p data-start="2759" data-end="2941">“Eliana” is Hebrew for <em data-start="2782" data-end="2812">God has answered our prayer.</em><br data-start="2812" data-end="2815" />And “Jane” means <em data-start="2832" data-end="2854">God’s gracious gift.</em><br data-start="2854" data-end="2857" />We chose her name to reflect the meaning and the miracle behind this entire journey.</p><p data-start="2943" data-end="3032">To everyone who sent gifts, well wishes, and love: <strong data-start="2994" data-end="3008">thank you.</strong><br data-start="3008" data-end="3011" />We feel so supported.</p><h3 data-start="3039" data-end="3089">🧠 For Those Navigating Pregnancy + Narcolepsy</h3><p data-start="3091" data-end="3168">If you’re pregnant and also living with narcolepsy or hypersomnia, I see you.</p><p data-start="3170" data-end="3311">This isn’t easy. The fatigue is different. The symptoms don’t pause for pregnancy.<br data-start="3252" data-end="3255" />But your strength is real — even when you don’t feel it.</p><p data-start="3313" data-end="3491">If you’ve been through it (or are in it now), I’d love to hear your story.<br data-start="3387" data-end="3390" /><strong data-start="3390" data-end="3428">Share in the comments or reach out</strong> — we’re building a community that doesn’t sugarcoat the truth.</p><p data-start="3498" data-end="3608"><strong data-start="3498" data-end="3550">More to come as we approach the third trimester.</strong><br data-start="3550" data-end="3553" />Until then, sending you rest, strength, and solidarity.</p><h4 data-start="2491" data-end="2517">💌 Let’s Stay Connected</h4><p data-start="2519" data-end="2616">I’ve loved reading your messages and comments — thank you for being part of this journey with me.</p><p data-start="2618" data-end="2662">If you’d like to keep up with these updates:</p><ul data-start="2663" data-end="2898"><li data-start="2663" data-end="2761"><p data-start="2665" data-end="2761">📺 <a class="decorated-link" href="https://www.youtube.com/@PWN4PWN" target="_new" rel="noopener" data-start="2668" data-end="2744"><strong data-start="2669" data-end="2693">Subscribe on YouTube</strong></a> for future vlogs</p></li><li data-start="2762" data-end="2824"><p data-start="2764" data-end="2824">📨 <strong data-start="2767" data-end="2792">Join our newsletter below</strong></p></li><li data-start="2825" data-end="2898"><p data-start="2827" data-end="2898">✍️ <strong data-start="2830" data-end="2863">Want to share your own story?</strong> Submit using the form on this page</p></li></ul><h4 data-start="2905" data-end="2928"> </h4><h4 data-start="2905" data-end="2928">💤 Stay naptastic,</h4><p data-start="2929" data-end="2937"><strong data-start="2929" data-end="2937">Jane</strong></p>								</div>
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		<title>Pregnancy Update #2: SUPERWOMAN &#8211; Juggling Narcolepsy, Pregnancy &#038; Heartburn!</title>
		<link>https://www.pwn4pwn.org/2025/05/25/pregnancy-update-2-superwoman-narcolepsy-heartburn/</link>
					<comments>https://www.pwn4pwn.org/2025/05/25/pregnancy-update-2-superwoman-narcolepsy-heartburn/#respond</comments>
		
		<dc:creator><![CDATA[Jane Powell]]></dc:creator>
		<pubDate>Sun, 25 May 2025 14:30:52 +0000</pubDate>
				<category><![CDATA[Video Blog]]></category>
		<category><![CDATA[Fatigue in Pregnancy]]></category>
		<category><![CDATA[heartburn during pregnancy]]></category>
		<category><![CDATA[High-Risk Pregnancy]]></category>
		<category><![CDATA[Jane Powell]]></category>
		<category><![CDATA[Napchat]]></category>
		<category><![CDATA[Narcolepsy and Pregnancy]]></category>
		<category><![CDATA[Pregnancy Update]]></category>
		<category><![CDATA[PWN4PWN]]></category>
		<category><![CDATA[second trimester]]></category>
		<guid isPermaLink="false">https://www.pwn4pwn.org/?p=6977</guid>

					<description><![CDATA[💕 Hello PWN Family! I’m excited to share my second pregnancy update — I’m 16 weeks along and expecting a baby girl! According to the baby apps, she’s now the size of an avocado (🥑), though I swear she’s already making her presence known in bigger ways&#8230; hello, surprise heartburn. If you haven’t yet seen [&#8230;]]]></description>
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									<h3 data-start="454" data-end="477">💕 Hello PWN Family!</h3><p data-start="479" data-end="574">I’m excited to share my second pregnancy update — I’m 16 weeks along and expecting a baby girl!</p><p data-start="576" data-end="742">According to the baby apps, she’s now the size of an avocado (🥑), though I swear she’s already making her presence known in bigger ways&#8230; hello, surprise heartburn.</p><p data-start="744" data-end="889">If you haven’t yet seen the latest vlog, here it is:<br data-start="796" data-end="799" />🎥 <a class="decorated-link" href="https://youtu.be/NnfUbQuffSc?si=ZHIF-jgQRgf5nQjD" target="_new" rel="noopener" data-start="802" data-end="889"><strong data-start="803" data-end="838">Watch the full video on YouTube</strong></a></p><h4 data-start="896" data-end="941">🔥 The Ups, the Downs&#8230; and the Heartburn</h4><p data-start="943" data-end="1064">So far, I’ve avoided morning sickness, which I’m grateful for. But the heartburn? Out of control. Even water sets it off.</p><p data-start="1066" data-end="1198">Bananas, almond butter, alkaline water — all no-go foods for me right now.<br data-start="1140" data-end="1143" />My safest option? Italian wedding soup. And lots of it.</p><h4 data-start="1205" data-end="1240">⚖️ Weight Check-ins and Wellness</h4><p data-start="1242" data-end="1391">One thing I’ve been keeping an eye on is my weight. Even deep into my second trimester, the scale hasn’t moved much. If anything, I’ve lost a little.</p><p data-start="1393" data-end="1573">Thankfully, my doctors aren’t worried. They reminded me that most weight gain typically happens in the third trimester. Baby girl is healthy and active, which is what matters most.</p><h4 data-start="1580" data-end="1607">📸 Ultrasound Highlights</h4><p data-start="1609" data-end="1787">At our latest ultrasound, she was bouncing around so much that the tech had trouble getting a clear image. We still got a few “glamour shots,” and seeing her profile was surreal.</p><p data-start="1789" data-end="1911">If the old wives’ tales are true, all this heartburn means she’s coming out with a full head of hair — just like her mama.</p><h4 data-start="1918" data-end="1960">😴 Managing Narcolepsy During Pregnancy</h4><p data-start="1962" data-end="2047">On top of all the usual pregnancy symptoms, I’m managing narcolepsy, too. It’s a lot.</p><p data-start="2049" data-end="2060">What helps:</p><ul data-start="2061" data-end="2184"><li data-start="2061" data-end="2086"><p data-start="2063" data-end="2086">Getting structured rest</p></li><li data-start="2087" data-end="2126"><p data-start="2089" data-end="2126">Staying honest about my energy limits</p></li><li data-start="2127" data-end="2155"><p data-start="2129" data-end="2155">Practicing self-compassion</p></li><li data-start="2156" data-end="2184"><p data-start="2158" data-end="2184">Celebrating the small wins</p></li></ul><p data-start="2186" data-end="2279">Some days are smoother than others, but I’m learning to listen to my body in a whole new way.</p><h4 data-start="2286" data-end="2305">📅 Looking Ahead</h4><p data-start="2307" data-end="2484">I’ve got another checkup next week, and I’m both nervous and excited to see how much she’s grown. For now, I’m focusing on rest, hydration, health, and a whole lot of gratitude.</p><h4 data-start="2491" data-end="2517">💌 Let’s Stay Connected</h4><p data-start="2519" data-end="2616">I’ve loved reading your messages and comments — thank you for being part of this journey with me.</p><p data-start="2618" data-end="2662">If you’d like to keep up with these updates:</p><ul data-start="2663" data-end="2898"><li data-start="2663" data-end="2761"><p data-start="2665" data-end="2761">📺 <a class="decorated-link" href="https://www.youtube.com/@PWN4PWN" target="_new" rel="noopener" data-start="2668" data-end="2744"><strong data-start="2669" data-end="2693">Subscribe on YouTube</strong></a> for future vlogs</p></li><li data-start="2762" data-end="2824"><p data-start="2764" data-end="2824">📨 <strong data-start="2767" data-end="2792">Join our newsletter below</strong></p></li><li data-start="2825" data-end="2898"><p data-start="2827" data-end="2898">✍️ <strong data-start="2830" data-end="2863">Want to share your own story?</strong> Submit using the form on this page</p></li></ul><h4 data-start="2905" data-end="2928"> </h4><h4 data-start="2905" data-end="2928">💤 Stay naptastic,</h4><p data-start="2929" data-end="2937"><strong data-start="2929" data-end="2937">Jane</strong></p>								</div>
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		<title>Pregnancy Update #1: My Valentine’s Day Surprise 💕</title>
		<link>https://www.pwn4pwn.org/2025/05/09/pregnancy-update-1-valentines-day-surprise/</link>
					<comments>https://www.pwn4pwn.org/2025/05/09/pregnancy-update-1-valentines-day-surprise/#respond</comments>
		
		<dc:creator><![CDATA[Jane Powell]]></dc:creator>
		<pubDate>Fri, 09 May 2025 15:24:09 +0000</pubDate>
				<category><![CDATA[Video Blog]]></category>
		<category><![CDATA[Chronic Illness and Pregnancy]]></category>
		<category><![CDATA[First Trimester]]></category>
		<category><![CDATA[High-Risk Pregnancy]]></category>
		<category><![CDATA[Jane Powell]]></category>
		<category><![CDATA[Narcolepsy and Pregnancy]]></category>
		<category><![CDATA[Pregnancy Journey]]></category>
		<category><![CDATA[Pregnancy Over 40]]></category>
		<category><![CDATA[Pregnancy Update]]></category>
		<category><![CDATA[PWN4PWN]]></category>
		<category><![CDATA[Valentine’s Day Pregnancy]]></category>
		<guid isPermaLink="false">https://www.pwn4pwn.org/?p=7302</guid>

					<description><![CDATA[💕 The Valentine&#8217;s Day Surprise That Changed Everything I still can’t believe I’m saying this… I found out I was pregnant on Valentine’s Day. 💖 It was unexpected. It was emotional. It was beautiful.And now, I’m sharing the beginning of this new chapter with you. 🎥 Watch the full video here:👉 Pregnancy Update #1 on [&#8230;]]]></description>
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									<h3>💕 The Valentine&#8217;s Day Surprise That Changed Everything</h3><p data-start="447" data-end="539">I still can’t believe I’m saying this… I found out I was pregnant on <strong data-start="516" data-end="536">Valentine’s Day.</strong> 💖</p><p data-start="541" data-end="662">It was unexpected. It was emotional. It was beautiful.<br data-start="595" data-end="598" />And now, I’m sharing the beginning of this new chapter with you.</p><p data-start="664" data-end="789">🎥 <strong data-start="667" data-end="697">Watch the full video here:</strong><br data-start="697" data-end="700" />👉 <a class="decorated-link" href="https://youtu.be/0R7LqlsG3H4?si=ilO38Q5YdA_oOjN7" target="_new" rel="noopener" data-start="703" data-end="789"><strong data-start="704" data-end="738">Pregnancy Update #1 on YouTube</strong></a></p><h4 data-start="796" data-end="824">🩺 High-Risk, High Hopes</h4><p data-start="826" data-end="938">Because I have narcolepsy — and because I’m over 40 — this pregnancy is considered <strong data-start="909" data-end="922">high-risk</strong> from the start.</p><p data-start="940" data-end="1115">That said, I’ve always been open about my health journey. So it only feels right to be just as honest as I step into this <em data-start="1062" data-end="1078">completely new</em> (and slightly terrifying) adventure.</p><h4 data-start="1122" data-end="1160">🥂 From Prosecco to Pregnancy Test</h4><p data-start="1162" data-end="1325">It all started the night before Valentine’s Day. I was sipping a glass of Prosecco when I suddenly felt sick — like, <strong data-start="1279" data-end="1308">&#8220;this drink might be bad&#8221;</strong> level of nausea.</p><p data-start="1327" data-end="1370">Alan, my partner, looked at me and asked,</p><blockquote data-start="1371" data-end="1409"><p data-start="1373" data-end="1409">“Are you sure you’re not expecting?”</p></blockquote><p data-start="1411" data-end="1550">I brushed it off because I had taken a test that Sunday (I was tracking regularly). But something nudged me to test again the next morning.</p><h4 data-start="1557" data-end="1605">✨ A Positive Test… and a Bigger Conversation</h4><p data-start="1607" data-end="1691">On <strong data-start="1610" data-end="1625">February 14</strong>, I took the test. And then I waited. And while waiting, I prayed.</p><blockquote data-start="1693" data-end="1830"><p data-start="1695" data-end="1830"><em>I remember thinking maybe God wasn’t saying I waited too long — maybe He was just saying that life would still be good, no matter wha</em>t.</p></blockquote><p data-start="1832" data-end="1909">But then&#8230; the result appeared. Positive. Everything changed in that moment.</p><h4 data-start="1916" data-end="1972">🧬 Decisions, Deadlines, and Talking to a Geneticist</h4><p data-start="1974" data-end="2177">Because of Florida&#8217;s medical policies, I knew I had very little time to make important decisions if I needed to. So I immediately asked for consults with a <strong data-start="2130" data-end="2144">geneticist</strong> and a <strong data-start="2151" data-end="2176">medication specialist</strong>.</p><p data-start="2179" data-end="2272">USF Health had me on a call in just two days. I’ll never forget what the geneticist asked me:</p><blockquote data-start="2274" data-end="2312"><p data-start="2276" data-end="2312">“Jane, what is really your concern?”</p></blockquote><p data-start="2314" data-end="2331">My honest answer?</p><blockquote data-start="2333" data-end="2373"><p data-start="2335" data-end="2373">“If the baby’s not born with a skull…”</p></blockquote><p data-start="2375" data-end="2523">I know. Dramatic. But it was coming from a place of fear — not knowing what was ahead, how fast things were moving, and what was medically possible.</p><h4 data-start="2530" data-end="2552">🧪 The First Tests</h4><p data-start="2554" data-end="2605">So far, I’ve completed two sets of genetic testing:</p><ul data-start="2606" data-end="2661"><li data-start="2606" data-end="2629"><p data-start="2608" data-end="2629"><strong data-start="2608" data-end="2629">Carrier screening</strong></p></li><li data-start="2630" data-end="2661"><p data-start="2632" data-end="2661"><strong data-start="2632" data-end="2661">Chromosomal abnormalities</strong></p></li></ul><p data-start="2663" data-end="2716">Both came back <strong data-start="2678" data-end="2691">negative.</strong> Which was such a relief.</p><p data-start="2718" data-end="2849">At the time of recording the video, I was around 15 weeks.<br data-start="2776" data-end="2779" />Right now, I’m just taking it one day (and one appointment) at a time.</p><h4 data-start="2856" data-end="2887">💭 Looking Back (and Ahead)</h4><p data-start="2889" data-end="2982">This journey started with one quiet moment, one unexpected test, and a whole lot of feelings.</p><p data-start="2984" data-end="3146">I’ll be sharing more in future posts and videos — everything from narcolepsy + pregnancy management, to symptoms, cravings, and how I’m really doing week by week.</p><p data-start="3148" data-end="3186">But for now, this is how it all began.</p><h4 data-start="2491" data-end="2517" data-cya11y-org-font-size="24">💌 Let’s Stay Connected</h4><p data-start="3221" data-end="3311">Thanks for being here. Your support means so much — especially in this new season of life.</p><p data-start="3313" data-end="3346">If this story resonated with you:</p><ul><li>📺 <a class="decorated-link" href="https://www.youtube.com/@PWN4PWN" target="_new" rel="noopener" data-start="2668" data-end="2744" data-cya11y-org-font-size="16"><strong data-start="2669" data-end="2693">Subscribe on YouTube</strong></a> for future vlogs</li><li data-start="2764" data-end="2824" data-cya11y-org-font-size="16">📨 <strong data-start="2767" data-end="2792">Join our newsletter below</strong></li><li data-start="2827" data-end="2898" data-cya11y-org-font-size="16">✍️ <strong data-start="2830" data-end="2863">Want to share your own story?</strong> Submit using the form on this page</li></ul><h4 data-start="3623" data-end="3646">💤 Stay naptastic,</h4><p data-start="3647" data-end="3655"><strong data-start="3647" data-end="3655">Jane</strong></p>								</div>
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